I wish I had thought of that title, but I didn’t. There is an actual blog about Lyme Disease, authored by Connie Strasheim, called Lyme Bytes. It is hugely insightful when dealing with all aspects of Lyme Disease. In fact, she wrote a book called “Insights into Lyme Disease Treatment” which sits on my nightstand. This book has given me invaluable knowledge when I’m researching my own treatment.
I haven’t talked about my Lyme Disease, treatment, or my health in a good while. And frankly, since it consumed me all of last year, it has been nice to not think or write about it lately. But I did want to give you all an update. I know I was on many a prayer list this last year, and I am beyond grateful for your encouragement, prayers, and support.
I saw my Lyme specialist 4 weeks ago. He was floored at my progress. Basically, since mid-December I’ve been on the same oral antibiotic protocol, with additional herbal supplements and vitamins. In all, I
choke down take about 60 or so pills a day.
This includes 3 different antibiotics, Nystatin to keep the yeast at bay, plus all of the supplements. Four weeks ago I also started taking Low Dose Naltrexone (3 mg.) to boost my immune system. This is a very new addition in the treatment of Lyme. After beginning this medication, I’ve noticed a steady improvement particularly with regard to my range of motion, energy, and pain reduction.
And the wonderful news is that I’m no longer on any pain killers whatsoever. Save for the occasional Excedrin when my children cause my head to explode.
I’ve regained almost full mobility to my knee. Stairs are still an issue, but that has more to do with me rebuilding muscle than the Lyme Disease. I have full use of my right hand and left arm now. I still feel twinges of the disease, and I know it’s still there. But it’s really not slowing me down so much.
I’ve come an awfully long way in just a few short months. Which is very unusual for someone with chronic Lyme Disease, and with as many issues as I have had in the last year.
We’re attributing it to the fact that I began boosting my own immune system with supplements and diet before beginning treatment. And we just happened to hit on the right combination of oral antibiotics right out of the gate.
No two Lyme patients ever respond the same with identical treatment. Which is one of the reasons that it is so difficult for the medical community to wrap their collective head around treatment, much less initial diagnosis.
I had a phone meeting with my doctor today. Cailey was sick, so I stayed home while Fiddledaddy (who was in Orlando on business) sat in for me in my doctor’s office. It was all really high tech with me on Skype while wearing my vulcan head gear to hear better.
He reviewed all of my recent blood work, and concluded that I am only fighting one additional co-infection, which is a direct result of the Lyme Disease. It is not unusual to be fighting many co-infections, which can be tricky. What this means for me is that I’ll be changing my protocol in the next few days, and dropping two of my antibiotics, while adding another, stronger one.
I’m nervous about this, as I don’t want my progress to slow or reverse. But my doctor will be closely monitoring me. One rather off-putting side affect of my new antibiotic is that I have to avoid the sun for the next 2 months.
HOW DO YOU AVOID THE SUN IN FLORIDA?
So much for cute little strappy sandals and tube tops. As if. I’ll still be visiting the water parks with my family. I’ll be the one draped in a sheet. And a sombrero.
A small price to pay. Especially considering what a slave I am to fashion.
Honestly, I catch myself marveling at the fact that I can move from point A to point B with no pain. What a blessing. I’m beginning to feel normal again. Whatever the heck normal is. 🙂