I went to my highly anticipated doctor’s visit in Orlando today, and got the results back from all the tests. I have chronic Lyme Disease. A pretty bad case, as far as Lyme Disease goes. I’ve likely had it for a couple of years, since it as advanced as it appears.
I began having knee issues in January, after a bout with a viral flu in December. Which likely kicked everything into gear. And then because of the two (unnecessary) knee surgeries, the infection spread like wildfire to many other joints and soft tissue. It’s even present in my blood.
When he told me, I cried. And the only thing I could think of to say was, “I’m not crazy.”
Well. There was at least one other person in the room who could have successfully argued that point, but he had the good sense to remain silent.
My doctor told me that I have a very long road ahead of me, likely 3 to 12 months of treatment, but it IS CURABLE. Sadly, he said that it will likely get worse before it gets better because of the die-off factor as we’re treating the Lyme. Boo hoo.
I have a whole lot of other issues going on in my adrenal glands, liver, digestive system, etc. which we have to tackle in the next few weeks before we can even begin to address the Lyme Disease. I will be on an antibiotic for the next 5 days, plus some supplements that will directly address some of the other problems. I also had intravenous vitamin therapy today, which if it helps me to feel better, will continue weekly for the next few weeks.
Interestingly, I learned that because of the severity of the disease, it really does not matter what I eat at this point. It won’t help. I’m not going to use that as a license to go crazy. I KNOW! It’s awfully tempting. I’m going to continue to avoid those foods that I have an intolerance to, and I’ll continue on a mostly plant based diet.
BUT I GET TO HAVE COFFEE! My doctor said that I will likely need it in the morning to counteract the MUSCLE RELAXANT that he’s prescribed to help me sleep. Pain management will be key to getting me through the next few months.
I feel strangely vindicated. I knew it was a system wide infection. And I also knew in my heart that it was not Rheumatoid Arthritis.
I’m hugely relieved to now know what I’m fighting. Thank you all so much for your continued encouragement and prayers!
I’m going to take a long weekend and digest everything I’m learning.
Oh, and don’t forget that I still have a $100 Visa Gift card giveaway going on through 12/31, courtesy of BlogHer and Welch’s!
Have a wonderful and blessed Thanksgiving weekend!