Space Cadet

Lately I’ve been operating a few fries short of a Happy Meal.  Which is very unlike me.  But today, I realized that my phone meeting with Barbara Allan is scheduled for next Wednesday and not today.  After 3 or 8 more mishaps like that one all in one day, Fiddledaddy was prompted to quip, “Well, I don’t remember brain damage being one of the side affects of Methotrexate.”

Seriously.  I find myself standing in the middle of the garage for no reason.  And it isn’t until I limp back into the kitchen that I remember I went out to retrieve bread from the freezer.  So I go back to the garage, and get side tracked by the laundry calling my name from the dryer, and then I find myself back in the kitchen looking for the bread.

Which is still out in the freezer.

And by the way, I’ve been off of Methotrexate for nearly 2 weeks now.  Which is what I really intended to talk about, but LOOK, MY KEYBOARD IS REALLY REALLY FILTHY AND HOW DO YOU CLEAN A KEYBOARD?

Anyhoo.  Going off of the Methotrexate was one of the harder decisions that I’ve had to make since this whole ordeal began 34 years 9 months ago.  I was terrified to not be under my Rheumatologist’s umbrella of RA medications.  But I knew that she wanted me to go on something stronger, as well as stay on the Methotrexate.  And I think I was even more afraid of that.

Yet, another part of me wanted to try to fight this thing using nutrition, and I knew that it would be harder to get off of the medication the longer I was on it.  And please know that this was an extremely personal decision, and that I’m not advocating getting off of RA meds.  I just want to journal my, well, journey, and I have no idea what the outcome will be. It’s like writing a book when you have absolutely no idea how it’s going to end.  I do have my family physician keeping close tabs on me, as well as a guidance counselor who is used to dealing with people with chronic illnesses.

So, technically, this time I’m not really flying by the seat of my control top pantyhose.

The day after I deliberately did not take my weekly dose of Methotrexate, I received the results of my food sensitivity test.  AND WHAT LUCK!  All the foods that I’ve been ingesting at break neck speed because THEY ARE HEALTHY are the very foods that show up on my test as Severe Intolerance all the way down to Mild Intolerance.

Foods such as blueberries, mushrooms, and asparagus are SEVERE and I must stay away from them for 6 months.  Then innocuous delights such as apples, chicken, honey, NAVY BEANS, spinach, tapioca (key ingredient in all of my favorite rice bread products), and turkey all show up as Moderate Intolerance and must be avoided for 3 to 6 months.

Then there’s a whole bunch of stuff under Mild Intolerance such as broccoli, cantaloupe, banana, basil, cauliflower, yellow squash, plus some that I need to eat rarely, and never repeat closer than 4 days apart.

After perusing this list, and having been completely overwhelmed by ALL THE RESEARCH I’ve been reading, I headed for the shower and had a good cry.

Then afterward, I pulled myself up by my leg brace, and faced the list once more.  But this time I decided to concentrate on the things which show absolutely no intolerance to whatsoever.

Things I really do love.  Like chick peas, lima beans, white potatoes, eggs, avocados, watermelon, oranges, mangos, salmon, corn, and rice.  The tricky part for me is to make sure that I’m getting enough protein, since BEANS (excluding green beans) show up as an intolerance.  However, lentils are fine and dandy.

I started scouring my pantry, looking at ingredients, determining what is not dead to me.  And I was pleasantly surprised to find that I would not waste away, as I had already envisioned in my obituary.  In all caps.  SADLY, SHE STARVED TO DEATH.

For the rest of the day, I avoided everything I was sensitive to.

And a weird thing happened.  On Sunday I woke up feeling better.  I did not use my leg brace all day, and did not need any pain killers.  I was ecstatic and shouted my good news to anyone who would listen.

But.  Then on Monday I woke up with the usual pain and stiffness, and the need for pain meds before noon.  Back to the shower.  More crying.  Lather, rinse, repeat.

What I’ve discovered is that I am likely going through detox.  Which can last any where from a couple of days up to 10.  And I have the classic symptoms, flu like symptoms, and general malaise.

The feeling is lessening somewhat, and I’m hopeful that this new food regiment will improve my range of motion and general health.  Basically, by controlling what nutrients my body is getting, I am enabling my body’s natural immune system to fight this disease on its own.

One thing I do know.  I’m not getting worse.  And since getting off Methotrexate my menses has once again reappeared (never thought I’d be happy about that) but it’s my body’s way of getting everything back in order.

Fiddledaddy ordered me a juicer today.  I like to think of it as an early Christmas present.  Because jewelry is over rated…

And I made myself reacquainted with the interior of our gym today as well.  I worked on the Nu-step for 12 minutes, and the bike for 5.   Then I dipped my knee into the jacuzzi, but was a little nervous to go further because all the bubbles made it difficult to see if anything was floating around, or laying in wait at the bottom.

You just can never be too careful…

~~~~~~~

On a lighter note, when Fiddledaddy went to pick Jensen up from Awana tonight, he was sitting in a little miniature chair with his arm draped around E’s shoulder.  “DADDY, DON’T WE LOOK CUTE TOGETHER?”

Fiddledaddy (prompting):  “Yes, but you are just friends, right?”

E:  “Yes, the best best best BEST of friends.”

I want to just bottle them up and keep them at this age for a sweet forever.

October 14, 2010

14 Responses to Space Cadet

  • Just reading about the amount of research you’ve done to get this far in adding to your knowledge to make wise decisions is overwhelming to me. That type of work truly impresses me, and I hope with you as well that these food changes will put your knee braced leg connected to the foot on the path of long lasting recovery.

    • Elle,

      Fiddledaddy has been the prime researcher in this adventure. I have to be honest and say that I’m more of a just-give-me-a-pill kind of gal. So all the credit goes to the intrepid husband. 🙂

  • My daughter has severe food allergies, and there are only about 20 foods that she can eat.

    You’d be surprised at what you can make with those lovely foods.

    Quinoa, millet and buckwheat are great grains to have.

    I also purchase a lot of stuff from https://www.glutenfreemall.com

    It is hard to not be overwhelmed. I still get that way sometimes, and we are 4 years into this.

  • i’ve been drinking bird nest soup every night (i only get the homemade kind back at home). the only reason why i drink it is because it’s supposed to be good for complexion.

    i’ve been taking the store-bought kind online (e.g. http://www.geocities.jp/hongkong_bird_nest/index_e.htm of famous branded only of course) which is directly mailed from Hong Kong. this would be at a more affordable price.

  • As the new owner of a Brevelle juicer thingy, a word of experience…..

    – don’t give up, the first recipe we juiced was HORRIBLE!
    – juicing fruits is a good place to start.
    – try two ingredient juices first, work your way up.
    – ALWAYS wash it out as soon as you get done! The pulp turns to cement!!!

    A couple weeks into juicing and we are loving it. Slowly finding the combinations we enjoy. It’s fun.

    Only down side, now hubby wants a worm compost!! He feels bad just throwing all that pulp away. 😉 That’s one homeschool project he will have to be in charge of!

  • I am so proud of you, and am keeping you in prayer as you discover what works best for you and your family during this journey.

    And, yes, jewelry is over rated… 😉

    p.s. I love lentils and have some delish recipes.

  • Dee Dee,
    Keeping you in my prayers, dear. I don’t know how you do it. I’m dragging my sorry butt around and I don’t have any children to keep up with…although Death and Destruction (my grandsons) have been with me all week. They are going home to Momma this evening and I am going to crash. I’m interested to know if the juicer does a better job than your Vita Mix. I adore my Vita Mix.

    Hang tough, girlie! I’m embracing the new, ‘blonde’ me. I’m finally turning into my scatterbrained Mother, Sister and Daughter.

  • WOW when I started to read all the things you can no longer have I started thinkin “Wow this lady will starve to death” then you mentioned it as well and I had to laugh out loud! I know that what you are going through is not funny and that it requires a HUGH change of life but still you make your readers smile. What a gift you are to all of us. I continue to pray for you.

  • One thing only.

    I am proud of you, and FD.

    So there.

    Keep on truckin’.

  • Off all the things you can’t have, what exactly can you have??? I find you amazing to keep such a great sense of humor in all of this. God is surely sustaining you at this point and giving you the stength to move into the next level!!! Keep on Lookin Up and you will make it..

  • Wow. That is some powerful list. Which got me thinking about something else I read lately. But I can’t remember where. (Grrr. Dang memory made of Swiss cheese!). Anyway, it was related to food alleges & intolerances, a lengthy list and Ethiopian food. Apparently Ethiopian cuisine is good for many with multiple food intolerances, who are primarily vegetarian. It is worth looking into, and seeing what is on your list, and building a repertoire od recipes. Also…Indian recipes tend to use lots of lentils. In lots of ways.

    Happy recipe exploring!

  • I don’t know if this will make you feel any better or not, but walking out into the garage and standing there trying to remember what you’re out there for is classis “40-itis”. I’ve been doing that for at least 8 years.