I met with the Rheumatologist at the Mayo Clinic. After looking at all of the tests that are in so far, and speaking with the Radiologist, he believes that I have Rheumatoid Arthritis. A very a-typical case. Which may be why no one has been able to put a definitive name on it. All of my blood work has shown up negative for Rheumatoid Factor, and nothing about my joint effusion is symmetrical, but everything else points to R.A.
He spoke with the orthopedic specialist that saw me last week, and they agreed that a system wide infection, as was first suspected, is unlikely.
I have a meeting scheduled with a highly respected local Rheumatologist on Friday, and I’ll be going over everything with my family doctor on Thursday. I so completely rely on his advice. I know he’s going to be steering me in the right direction as far as nutrition during treatment.
I fear that ChocoVine may have to be dead to me. Because of drug interaction concerns, Fiddledaddy wouldn’t let me have any this weekend. A FINE TIME TO QUIT DRINKING, WHILE TRAPPED IN A HOTEL ROOM WITH 5 PEOPLE. SOMEBODY DID NOT THINK THAT ALL THE WAY THROUGH.
I’m going to be starting on Methotrexate (low dose chemo drug), with a side of Folic Acid. I also got a prescription for Pennsaid, which is a topical treatment for my knee.
We came home early because Papa Bear’s bed was too soft, and Baby Bear’s bed made her cry because the springs were sticking her in the back, and Mama Bear doesn’t really care where she is as long as her pain killers are close at hand.
And all of the specialists I spoke to over the last week have assured me that the dosages of pain meds that I’m taking are safe. Good dang thing.
On our way home, after an exhausting day which began at 5 in the morning, and a 3 plus hour drive, we stopped at the pharmacy to have my prescriptions filled. Since it’s a drive through, a sign is posted asking that you turn your car off during the transaction. Well. We decided to wait for everything to be filled, late at night, in the heat, and chat with the pharmacist about Methotrexate and such. This took about 20 mind numbing minutes.
From the back of the van, a sleepy 8 year old pops up, “Where are we?”
Wherein we hear the 5 year old answer, “We’re in hell.”
Then Fiddledaddy turns to him, “What did you say.”
A very guilty looking Jensen covers quickly, “I said I love God.”
Attempting to stifle laughter, Fiddledaddy gave him a mini-lecture on lying and hell. Not necessarily in that order.
I have a nice long road ahead of me. I don’t know what I’m feeling. I would really rather have been diagnosed with something curable. Like immediately. But life doesn’t always work that way.
I know a few of you guys have mentioned to me that you have R.A. Please let me know about your treatment plan. And if you’re more comfortable using the “contact me” page at the top under my header, please do!
The real kick in the seat of the panty hose to me today was the knowledge that the two knee surgeries that my family suffered through with me, were very likely unnecessary.
Moving on. I’ll be staying focused on the journey ahead. And I’ve no doubt that God has a good deal to teach me through this. Thank you all again for your prayers. I could absolutely feel them.