Not more than 5 minutes after Jensen was fresh out of his footy pajamas, he announced “This day is boring.”
He’s 3. What does he know of boring?
“Well, small boy, the day is young. We can only go up from here.”
I have to stifle a chuckle, as with this particular one of my offspring treats each moment as if it’s a thrilling roller coaster ride.
And I’m just strapped in for the duration of the ride.
We’ve had a lot of twists and turns of late in the House of Fiddle. And there is one I wanted to share with you, mostly because of all the support I have received over the last 8 months with regards to Jensen’s health issues.
Eight months ago, he was diagnosed with severe food allergies. The list was staggering, and left me with little idea what to feed him. You all jumped in with amazing websites, ideas, and recipes. And most of all, you gave me hope and support. I will never forget that.
In the last month or so, Jensen seemed to have a rather significant setback. It didn’t seem to matter what I was feeding him, he would still suffer from fits of severe itching. So much so, that he was literally ripping his skin to shreds with his own fingers.
And yes, we put socks on his hands and used brightly colored duct tape to secure them (to his pajamas), and called them his “Super Gloves.”
Still he was miserable. Colorful. But miserable.
Last Friday, he saw a different doctor. One that specializes in pediatric allergies. After a lengthy exam, this doctor concluded that food is not the culprit.
Jensen has Atopic Dermatitis (or Excema). This is not news to us. But this doctor has a very different theory about how to treat it.
He interpreted his old blood work to indicate that Jensen may be allergic to eggs, peas, and salmon. (These have all been stricken from his palate for 8 months.) There may be some pollen issues also, so he had Jensen retested. We’ll get those results back in a few weeks.
He recommended that we bathe him for up to 20 minutes, 3 times a day. Afterwards, lightly dry him and slather him with either Aquaphor or Vanicream. Some of the oils we had been using may have been irritating him. He has also prescribed Hydroxyzine instead of an antihistamine.
His skin is so severely dry, that we cannot allow it to go without this heavy duty moisturizer. We’ve also cut back on running the heater. Which in Florida is not a great sacrifice. It has been very dry here lately, which accounts for this appearing seasonal.
And folks, we’re giving this sweet boy pretty much whatever he wants to eat. He has been such a trooper about his diet restrictions. And his eyes LIT UP when we gave him his first cheese stick.
Result: HUGE IMPROVEMENT. After a week, his diet does not seem to affect his skin. Cooking has once again become a joy.
Well, joy may be too strong of a word. But I don’t break down and cry in the kitchen as often.
We’re just thanking God for this development. I don’t know if he’s “grown out” of the other allergies, or they were misdiagnosed. We’re just moving forward. Gratefully.
My heart goes out to all the allergy moms out there. It is heart breaking to see out children suffer, and to feel powerless in helping them.
I have so much more of an understanding and am so much more aware whenever I pack snacks for my kids when they are going to attend a public event. There may be children attending who face life threatening food allergies.
Anyhoo. That’s one of the interesting twists that we’re facing here. I’ll keep you posted as to the results of his testing.
And thank you again for all your support and sweet e-mails checking on my little man.