I’ve needed to take a little impromptu blogging break. We’re dealing with some significant health issues with my baby boy. But finally, praise God, we’re seeing a light at the end of the tunnel.
A very long tunnel. But I now have hope, so if I squint, I can see the end of it. That hasn’t always been the case.
Jensen has been diagnosed with severe Atopic Dermatitis. Simply put, he feels as though his skin is on fire, most of the time. He is miserable. He has trouble sleeping. And he can only look to us, his bedraggled parents, to make it all better. And so far, we’ve been unable to do that.
We’ve been doing our research, and trying many many different approaches, but, it seems that for every two steps forward, we take three steps back. This accounts for so many of his behavior issues. He is in pain.
And it has left me heartbroken.
This week, we met with a Christian holistic medical doctor in another town. It will take time, patience, and mean a lot of changes, but, he is very treatable.
HE IS VERY TREATABLE!
And unlike other Pediatricians we’ve seen, who simply want to slather him in steroids and hope he’ll grow out of it, this doctor goes about the business of healing the patient from the inside out.
I’ve been trying many different things with his diet, but this doctor has given me a very clear direction. Effective immediately, I have to take Jensen off of all dairy, wheat, gluten, and citrus fruits.
And here is the really great part! HE’S A REALLY REALLY PICKY EATER! And would eat only McDonald’s nuggets if I let him.
But there’s a new sheriff in town. One who is going to have to get awfully creative. With a bag of rice flour.
OH YEAH! And our little town doesn’t have a Whole Foods. Or a Trader Joes. A challenge, to be sure.
And he can only wear clothes made of 100% cotton. I just discovered that all his favorite blankets that he sleeps with are made of 100% polyester. Who thought that one up? Even his socks are not 100% cotton.
A while back, I started making my own washing machine detergent for his clothes. And I double rinse them and use those funny blue dryer balls, instead of fabric softening sheets.
I’m just like Ma Ingalls. Except I don’t have to beat the clothes on a rock by the creek. Yeah, I’m just like her.
Without going into all of the medical explanation, my boy is unable to digest many foods. This is also called “Leaky Gut Syndrome” and is linked to Candida, yeast overgrowth. For Jensen, it manifests itself as Atopic Dermatitis. He has a rash all over his little body, and he will scratch himself until he bleeds. He is now on very powerful probiotics, and oils, to boost his little immune system.
There is so much more to this, but I’m still trying to wrap my head around it, and there is still so much more research that I need to do.
I wanted to put this out there, to see if you all could help me, if you have any knowledge of this problem. Specifically, I’m looking for websites, recipes, cookbooks and tried and true products that can aid me in cooking for this little man.
Also, I want to find stores that sell clothing made of 100% cotton. Especially socks. And pajamas with feet in them.
(I did just order 3 pairs of size 5 pajamas with feet from Gap online. Woot!)
The diet that Jensen will be on is very similar to the diet used for kids with autism. And, thanks to Jenny McCarthy going public with her struggles and eventual cure of her autistic son, a holistic approach is more mainstream now. And there is a lot more information.
I am so grateful to have hope. I mean, this is not life threatening. And it is treatable.
And I am so grateful to you all, who are a listening ear when I need to just vent and ramble! Thank you, my bloggy friends!